Deletion of family's #23andme data complete.
If you haven't done so already, do it asap to keep your generic data out of the hands of an unknown acquirer.
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«#23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problem»
I’d argue that data is even more problematic. They’ve always guarded the phenotype data that customers provide tooth & nail, probably as that’s where they saw the profit. Eg you could always download your genetic data, but not your survey responses. https://theconversation.com/23andme-is-potentially-selling-more-than-just-genetic-data-the-personal-survey-info-it-collected-is-just-as-much-a-privacy-problem-253220
The Conversation23andMe is potentially selling more than just genetic data – the personal survey info it collected is just as much a privacy problem
Mehr von 
The Conversation U.S.
For everyone trying to delete your 23andMe data...you can't
When you press delete on your 23andMe account and data, it will vanish from the site. But a clause in the privacy statement and 23andMe’s adherence to laboratory rules mean that your genetic background is still there, somewhere, in the company’s records.
#23andMe #bankruptcy #DNA #genetics #privacy #biotech #business #technology
https://www.sfgate.com/tech/article/california-dna-delete-23andme-bankruptcy-19830420.php
Das einst angesagte US-Unternehmen, das Gentests für Privatleute anbot, meldete am 24. März seine Insolvenz. Jetzt liegt das Schicksal der genetischen Daten von 15 Millionen Menschen in den Händen eines Konkursrichters.
t3n Magazin · Konkurs des Gentest-Startups 23andme: Nur noch ein US-Richter kann eine Daten-Katastrophe verhindern - t3n – digital pioneersJeder neue Besitzer der Gendaten von 23andme wird Wege finden wollen, damit Geld zu verdienen. Der Gesetzgeber hat eine große Chance zum Datenschutz.
#Genetic data repo #OpenSNP to self-destruct before authoritarians weaponize it
The reason, according to #bioinformatics researcher Bastian Greshake Tzovaras, one of the founders of the project, is the dissolution of genetic testing biz #23andMe and the potential weaponization of genetic data by #farright #authoritarian regimes.
https://www.theregister.com/2025/04/01/opensnp_shutdown/
The Register · Genetic data repo OpenSNP to self-destruct before authoritarians weaponize it
On our radar: How to delete your data from 23andMe
“As uncertainty about the company’s future reaches its peak, all eyes are on the trove of deeply personal—and potentially valuable—genetic data that #23andMe holds.”
Emily Mullin & 
https://www.wired.com/story/how-to-delete-your-data-from-23andme/
WIRED · How to Delete Your Data From 23andMe
I've got a lot of thoughts about this, but the overriding one is gratitude that these folks finally woke up.
"Tzovaras had hoped that access to genetic data would improve human health and medicine, but now considers that aspiration naive. His 'bleaker' and more 'sober' view today is that providing food security and access to stable housing would have a more significant impact on human health than finding genetic answers to common diseases that follow from social and environmental problems, such as food and housing insecurity."
#openSNP
#genetics
#23andMe
#USPol
Genetic data sharing service openSNP to close down
https://www.theregister.com/2025/04/01/opensnp_shutdown/
The Register · Genetic data repo OpenSNP to self-destruct before authoritarians weaponize it
Genetik-Datenleak in den USA
Die Geschichte eines digitalen Super-GAUs und seiner Folgen
taz, 1.04.2025
"Das Ahnenforschungsportal 23andMe wollte die großen Rätsel der Menschheit lösen. Doch nach einem Hack landeten viele hochsensible Daten im Darknet."
Hier weiterlesen:
https://taz.de/Genetik-Datenleak-in-den-USA/!6076336/
Niemand ist überrascht. #23andme
https://mastodon.social/@tazgetroete/114267110823837679
Mastodontaz (@tazgetroete@mastodon.social)Das Ahnenforschungsportal 23andMe wollte die großen Rätsel der Menschheit lösen. Doch nach einem Hack landeten viele hochsensible Daten im Darknet. https://taz.de/!6076336
Just deleted my #23andMe data. I wanted to wait until I got a copy of that data but it was taking too long. Here's the steps if you haven't done it already.
Log in to your account
Go to "settings"
Scroll to "23andMe data"
Click "view"
Scroll to "delete data"
Click "permanently delete data"
Confirm your request
We have decided to sunset openSNP at the end of April. While triggered by the sale of #23andme, @PhilippBayer @i_dabble & I had been thinking about this for a while.
Ultimately, we think that it's the most responsible act of data stewardship given the state of the world. I've written a retrospective of the last 14 years of the project:
Bastian Greshake TzovarasSunsetting openSNP - a personal retrospective
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Bastian Greshake Tzovaras
Latest issue of my curated #cybersecurity and #infosec list of resources for week #13/2025 is out!
It includes the following and much more:
➝ DNA of 15 Million People for Sale in #23andMe Bankruptcy,
➝ #Trump administration accidentally texted a journalist its war plans,
➝ Critical Ingress #NGINX controller vulnerability allows RCE without authentication,
➝ #Cyberattack hits Ukraine's state railway,
➝ Troy Hunt's Mailchimp account was successfully phished,
➝ #OpenAI Offering $100K Bounties for Critical #Vulnerabilities,
➝ #Meta AI is now available in #WhatsApp for users in 41 European countries... and cannot be turned off
Subscribe to the #infosecMASHUP newsletter to have it piping hot in your inbox every week-end 
https://infosec-mashup.santolaria.net/p/infosec-mashup-13-2025
X’s InfoSec Newsletter🕵🏻♂️ [InfoSec MASHUP] 13/2025DNA of 15 Million People for Sale in 23andMe Bankruptcy, Trump administration accidentally texted a journalist its war plans, Critical Ingress NGINX controller vulnerability allows RCE without authentication, Cyberattack hits Ukraine's state railway, Troy Hunt's Mailchimp account was successfully phished, OpenAI Offering $100K Bounties for Critical Vulnerabilities, Meta AI is now available in WhatsApp for users in 41 European countries... and cannot be turned off
Bankrupt 23andMe’s DNA Data Gets Sale Nod as Concerns Linger
Bankrupt genetic testing firm 23andMe Holding Co. won permission from a judge to try to sell information about customers’ medical and ancestry-related data, a trove that is considered the most valuable asset in the insolvency case — and has become a source of privacy and safety concerns amid the company’s collapse
#23andMe #DNA #bankruptcy #business #DNA #genetictesting #genetics #technology #tech
https://finance.yahoo.com/news/bankrupt-23andme-dna-data-gets-223106622.html
Yahoo Finance · Bankrupt 23andMe’s DNA Data Gets Sale Nod as Concerns Linger
Gen-Daten zum Verkauf
Das Risiko zentraler Datenspeicherung
Mehr dazu bei https://netzpolitik.org/2025/23andme-gen-daten-von-ueber-15-millionen-menschen-stehen-zum-verkauf/
Artikel zu Gen- und biometrischen Daten https://www.aktion-freiheitstattangst.org/cgi-bin/searchartl.pl?suche=gendaten&sel=meta
a-fsa.de/d/3Gh
Link zu dieser Seite: https://www.aktion-freiheitstattangst.org/de/articles/9106-20250330-gen-daten-zum-verkauf.html
Link im Tor-Netzwerk: http://a6pdp5vmmw4zm5tifrc3qo2pyz7mvnk4zzimpesnckvzinubzmioddad.onion/de/articles/9106-20250330-gen-daten-zum-verkauf.html
Tags: #Gesundheitsdaten #Datenbanken #Gendaten #Verbraucherdatenschutz #Datenschutz #Datensicherheit #Datenpannen #Datenskandale #Verluste #23andMe #Insolvenz #Entschädigung #Transparenz #Informationsfreiheit #Verhaltensänderung
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Who could have predicted this? Really, a lot of people. @404mediaco’s @jasonkoebler reports on how 23andMe’s bankruptcy has led to more than 50 class-action and state court lawsuits from around 35,000 people who are worried about what will now happen to their genetic data.
https://www.404media.co/dna-of-15-million-people-for-sale-in-23andme-bankruptcy/
404 Media · DNA of 15 Million People for Sale in 23andMe BankruptcyThere is no way to know what a buyer will want to do with the reams of genetic information it has collected. Customers, meanwhile, still have no way to change their underlying genetic data.
